As a parent of an autistic child, you’re your child’s best advocate. The school year can bring excitement—but also uncertainty. Here’s a step-by-step guide to help you navigate the process confidently, using available New Jersey resources.
1. Understand and Navigate Special Education Rights (IDEA & IEP)
New Jersey public schools are required to provide services under the federal Individuals with Disabilities Education Act (IDEA). Your child’s Individualized Education Program (IEP) determines their learning supports—such as speech therapy, occupational therapy, aides, or extended school year (ESY) services.
Tips:
- Request your child’s IEP meeting early—ideally before the school year begins.
- Bring evaluation reports and previous IEPs.
- Ask for assessments if you’re concerned about specific areas.
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2. Engage With Key NJ Statewide Support Services
Special Education Ombudsman
New Jersey’s Department of Education has an ombudsman (Tracy Gillespie) who helps parents understand and resolve school-related issues including IEP disputes.
Contact: OSEinfo@doe.nj.gov or 609‑376‑9060
PerformCare
For children under 21 needing developmental or behavioral support, PerformCare offers referrals and ongoing assistance.
Call 1‑877‑652‑7624 or visit performcarenj.org
3. Join Parent Networking & Advocacy Organizations
- SPAN (Statewide Parent Advocacy Network): Offers one-on-one peer support, workshops, and training on rights, healthcare, and IEPs.
Website: spanadvocacy.org | Toll-free: 800‑654‑7726 - POAC (Parents of Autistic Children): Provides free training, workshops, and safety advocacy.
Website: poac.net - Autism New Jersey: Offers a toll-free helpline (800‑4‑AUTISM), educational tools, and service navigation help.
Website: autismnj.org - Autism Family Services of NJ: Provides social and recreational programs, after-school care, webinars, and more.
Website: autismfamilyservicesnj.org
4. Access Private & Special Education Schools
If your child needs a more specialized placement, New Jersey school districts can fund tuition and transportation for approved private schools:
- Hawkswood School (Eatontown) – Serves students with autism and developmental disabilities.
- Alpine Learning Group (Paramus) – Offers evidence-based instruction grounded in ABA principles.
Ask your district about out-of-district placements if public school services are not meeting your child’s needs.
5. Use Health & Insurance Resources
- NJ FamilyCare (Medicaid): Covers ABA therapy and related autism services for eligible children.
- New Jersey’s Mental Health Parity Act: Requires many insurance plans to cover therapies like speech, OT, and behavioral supports for autism.
6. Access Disability Services for Adult Transition Planning
As your child approaches age 18–21, start planning for adult services:
- DDD (Division of Developmental Disabilities): Offers long-term services including job training, residential support, and day programs.
- Vocational Rehabilitation Services: Helps teens and adults with disabilities find and maintain employment.
Check eligibility and begin applications early, as the process can take time.
7. Advocate Effectively at School
- Be prepared: Review evaluations and prior IEP goals ahead of meetings.
- Bring support: Consider bringing an advocate or trained parent from SPAN to meetings.
- Stay organized: Keep a binder or digital folder with all school communication, IEPs, and notes.
8. Support & Self-Care for You and Your Family
Being a strong advocate also means taking care of yourself. Explore:
- Parent support groups through SPAN and POAC
- Respite care options from agencies like Easterseals NJ
- Community events like the Autism Beach Bash for connection and joy
Resource Quick Guide
Resource | Purpose |
Special Education Ombudsman | IEP disputes, school rights |
PerformCare | Developmental services under 21 |
SPAN, POAC, Autism NJ | Advocacy, training, peer support |
NJ FamilyCare | Coverage for autism therapies |
Private Schools | Specialized education options |
DDD & Voc Rehab | Adult transition services |
Final Thoughts
The start of a new school year brings both opportunities and challenges. As a parent, your voice is powerful. With the right resources and support, you can help ensure your child receives the education and services they deserve.
If you need help preparing for IEP meetings, organizing documents, or connecting with advocates, don’t hesitate to reach out to these New Jersey organizations—they’re here for you.
AGBS provides ongoing care for children, adolescents, and young adults with autism to improve the quality of their lives. If you would like learn more about how AGBS can help please contact us here , or call 908-913-0443.
