Being the parent of a child with autism spectrum disorder (ASD) often means you’re deeply invested in becoming an effective advocate to ensure they receive appropriate care and services. For any parent, particularly those of children with special needs, the ambition is to fiercely support and adequately prepare their child for life. Here are actionable steps to help achieve this.
Guiding Your Autistic Child as Their Advocate
1. Educate Yourself
Learning as much as possible about your child’s specific form of autism is crucial. Seek information from both local and national groups offering resources and advice. As your child reaches school age, familiarize yourself with the Special Education process and their rights under the Individuals with Disabilities Education Act (IDEA).
2. Build Connections
Engaging with other parents of special needs children offers invaluable emotional support and practical advice. These parents can provide unique insights into navigating your local school system. If in-person groups are not your preference, online communities can be equally beneficial. Begin by searching for groups focused on disabilities or parent advocacy. The understanding and encouragement from those who empathize with your situation can be a significant asset.
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- Understanding the Dangers Facing Children with Autism and How to Keep Them Safe October 20, 2024
3. Stay Organized
Organize a personal advocacy binder with sections for educational records, medical documents, professional assessments, correspondence from school staff, and specific information about your child’s condition or state-specific special education regulations. Include copies of any letters you send regarding your child and maintain a log of phone call details. Bring this binder to meetings to demonstrate your thorough understanding of your child’s needs.
4. Be Specific and Assertive
Your key role as an advocate involves making informed decisions. To do this, you need comprehensive information and options. Persistently seek the information you require. If you envision changes in your child’s therapy or education, document your requests and suggestions in writing.
Remember, your role in your child’s life is unparalleled. By seeking assistance, garnering support, and accessing resources, you become not just an advocate, but also a powerful champion for your child.
AGBS provides ongoing care for children, adolescents, and young adults with autism to improve the quality of their lives. If you would like learn more about how AGBS can help please contact us here , or call 908-913-0443.
